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“I have founded this non-profit to work with Rare Trait Hope Fund to fund an upcoming clinical trial to treat this disease.  It’s a simple, well understood disease that lacks only one last thing – a Cure! Please join our journey to save the lives of a small group of kids whose illness is so rare that it’s almost impossible to attract the necessary interest and funding from investors/donors.

Thank-you for joining our fight.  Please help us by donating.  If you are in the United States, you can donate at  Please help us reach out to other donors by posting our website on your Facebook page, Instagram, or twitter account. Together, we can cure AGU! “ – Barbara Insley

Roa Floral and Event Design